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Support Users To Access INformation And Services

Main Goal: Patient empowerment by online access to EHR services

Program: ICT-PSP

Code: 297206


SUSTAINS SUSTAINS comprises a rich basket of services based on giving citizens online access to their Electronic Health Records (EHR). The services proposed have been distilled from the experience of regions which have already pioneered such access. The SUSTAINS Consortium is composed of regions in the EU leading in the area of innovation in services for citizens, and a number of user and professional associations all equally committed to the implementation of key action 13 of the Digital Agenda for Europe. Consortium Partners have already demonstrated this commitment by creating a Group of Interest with such a goal as its main mission. Regions will share their experiences and achievements to speed up the implementation of the SUSTAINS basket of services in a representative cross-section of EU regions. Patient empowerment is high on the agenda of the Consortium, together with great care in addressing the concerns of the professionals in what could be seen as a revolution in the patient-healthcare professional relationship. Legal and ethical issues associated with online access by citizens to their EHR will be thoroughly explored, and lessons will be drawn from 11 pilots in 9 EU countries and disseminated to facilitate the implementation of similar services by other regions. Meaningful and measurable indicators have been selected to assess the impact and satisfaction with the services by citizens/patients and professionals. SUSTAINS contributes to 3 major healthcare related issues in modern society:
1. Empowerment of patients: There is a growing tendency by patients and the public to question information from the health system, ask for a second opinion, demand respect and dignity in their treatment, expect convenience, etc.
2. Quality of care: New progress in healthcare means that patients demand, and healthcare professionals want to offer, the best quality of care.
3. Efficiency and economy: There is a growing demand from patients/citizens for improved efficiency and economy. .

Services to be implemented by the SALUD within this project are:
 - Administrative services
    o Book or rebook a consultation/diagnostic exam
    o GP or specialist change
    o Update personal information
    o Consult Audit trials
    o Access to health insurance data
    o Access to data of health service costs
    o Delegation of access
    o Mask sensitive data
    o Track referrals
    o Notification services
 - Clinical Services
    o Examine the EHR
    o Fill out a health declaration form
    o Print out drug and lab list before travelling abroad or outside region
    o Patients’ input into EHR
    o Integration of data relating to patients’ self-monitoring
    o Decision support

You can access the SUSTAINS services and questionnaires in the spanish version of this site, under the "Servicios al ciudadano" menu

You can also access through the following link SUSTAINS Services


Region SyddanmarkDEN
Health Information Management SABEL
County Council of UppsalaSWE
Regione del VenetoITA
Fundación Vasca de Innovación e Investigación SanitariasESP
Estonian E-Health FoundationEST
NHS National Services ScotlandGBR
European Connected HealthGBR
European Patients’ ForumLUX
5th Regional Health Authority of Central GreeceGRE
County Council of NorrbottenSWE
Etelä-Karjalan Sosiaali- Ja Terveydenhuollon KuntayhtymäFIN
Health Insurance Institute of SloveniaSLO